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What is an Autosomal Recessive Disease?

2-Sep-2017 by Debbie Jorde

Do you look a lot like the people in your family? I do too. Most people know this is because of genes we inherited from our parents. Some health problems are also passed down through families genes. I have two children who were born with two different autosomal recessive diseases, Miller syndrome, and primary ciliary dyskinesia, […]

Filed Under: FAQ's

What are Symptoms of Bronchiectasis?

1-Sep-2017 by Debbie Jorde

The rare disease Bronchiectasis (brong-ke-EK-ta-sis) is a chronic lung disease. Damage to the airways causes them to widen, become flabby, and scar. The airways are tubes that carry air in and out of your lungs. This disease is usually the result of an infection and other conditions that injure the walls of your airways prevent […]

Filed Under: Bronchiectasis

What is the Treatment for Bronchiectasis?

30-Aug-2017 by Debbie Jorde

Bronchiectasis treatment consists of medicines, hydration, and chest physical therapy (CPT) prescribed by your doctor. Your doctor may recommend surgery when the bronchiectasis is isolated to only a section of the lung or if you have a lot of bleeding. Your doctor may also recommend oxygen therapy, if the bronchiectasis is widespread and causing respiratory failure. […]

Filed Under: Future FAQ or Blog

Learn to Overcome Life’s Challenges from a Documentary of Man with Rare Syndromes

25-Aug-2017 by Debbie Jorde Leave a Comment

Learn to Overcome Life's Challenges from a Documentary of Man with Rare Syndromes

How do you overcome life’s challenges? A rare man who uses art, Rare Daily from Global Genes News.

Filed Under: LOGAN'S SYNDROME Documentary Tagged With: Logan's Syndrome Documentary

Strengthen Compassion

5-Jul-2017 by Debbie Jorde

Feeling more compassion and empathy brings acceptance of yourself and others which strengthens relationships. It also bridges the gap between the abled and the disabled by creating more understanding, better care, and love.

Filed Under: Benefits

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