Modern advancements in science and medicine will help you or someone you love soon. This is a news video about how our family received answers after 33 years of not knowing why our family has rare genetic diseases.
In the Media
Our family first appeared in the media and on television when the news covered Logan's first art exhibit Nature’s in the Details in 2006.
In 2010, we made historic, scientific, worldwide news by becoming the first family ever to have our entire genome sequenced. Two genes were found for the first time. One causes the rare disease, Miller syndrome, and the other causes a lung disease called primary ciliary dyskinesia (PCD). These two separate diseases affect both Heather and Logan. Later in 2010, I published my book, Eight Fingers and Eight Toes: Accepting Life’s Challenges.
In 2015, the news covered Logan's art exhibit, Syndrome Psychology. That year also brought successful funding for Logan’s documentary Kickstarter project called Logan's Syndrome, which won Best Feature Documentary in the Carmel Film Festival, Oct, 2017. We are looking forward to the documentary coming out in the winter of 2018. Check back often to see this exciting news announcement!
Disabled and autistic, Logan Madsen is accepting and overcoming challenges through his paintings and now in a documentary called, “Logan’s Syndrome.” This story is in the news here.
Groundbreaking human genetic research changed our family’s lives and may impact you or someone you know as well. Get a close-up view as reporters visit us in our homes and capture this exciting story in this video.
What interests do you engage in to help you overcome challenges? My son, Logan, paints amazing art in spite of being a disabled, autistic man with everyday challenges. Two news stations aired these inspiring stories.
This is a story of lives being changes and others gaining hope as scientists make a historical genetic discovery through DNA sequencing for the first time. This is our family and here is the story as it happened.