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In the Media

In the Media
Our family first appeared in the media and on television when the news covered Logan's first art exhibit Nature’s in the Details in 2006.
In 2010, we made historic, scientific, worldwide news by becoming the first family ever to have our entire genome sequenced. Two genes were found for the first time. One causes the rare disease, Miller syndrome, and the other causes a lung disease called primary ciliary dyskinesia (PCD). These two separate diseases affect both Heather and Logan. Later in 2010, I published my book, Eight Fingers and Eight Toes: Accepting Life’s Challenges.
In 2015, the news covered Logan's art exhibit, Syndrome Psychology. That year also brought successful funding for Logan’s documentary Kickstarter project called Logan's Syndrome, which won Best Feature Documentary in the Carmel Film Festival, Oct, 2017. We are looking forward to the documentary coming out in the winter of 2018. Check back often to see this exciting news announcement!

Media Enquiries

How DNA Sequencing Changed the Lives of the First Family Ever Tested

12-Sep-2017 by Debbie Jorde

Modern advancements in science and medicine will help you or someone you love soon. This is a news video about how our family received answers after 33 years of not knowing why our family has rare genetic diseases.

Filed Under: In The Media Tagged With: DNA/Gene Sequencing for Jorde/Madsen Family

Learn from Disabled, Autistic Man Accepting and Overcoming Challenges

12-Sep-2017 by Debbie Jorde

Disabled Autistic Man, Logan Madsen Accepting and Overcoming Challenges

Disabled and autistic, Logan Madsen is accepting and overcoming challenges through his paintings and now in a documentary called, “Logan’s Syndrome.” This story is in the news here.

Filed Under: In The Media Tagged With: Logan's Art, Logan's Syndrome Documentary, Syndrome Psychology Art Exhibit

DNA Sequencing Changes the Lives of the First Family Ever Tested

12-Sep-2017 by Debbie Jorde

DNA Sequencing Changes the Lives of the First Family Ever Tested

Groundbreaking human genetic research changed our family’s lives and may impact you or someone you know as well. Get a close-up view as reporters visit us in our homes and capture this exciting story in this video.

Filed Under: In The Media Tagged With: DNA/Gene Sequencing for Jorde/Madsen Family

Disabled Autistic Man Accepting and Overcoming Challenges through His Art

12-Sep-2017 by Debbie Jorde

Disabled Autistic Man Accepting and Overcoming Challenges through His Art

What interests do you engage in to help you overcome challenges? My son, Logan, paints amazing art in spite of being a disabled, autistic man with everyday challenges. Two news stations aired these inspiring stories.

Filed Under: In The Media Tagged With: Logan's Art, Logan's Flower Art, Nature's In the Details Art Exhibit

Historical Genetic Discovery Brings Hope through DNA Sequencing of First Family Ever

12-Sep-2017 by Debbie Jorde

Historical Genetic Discovery Brings Hope through DNA Sequencing of First Family Ever. SLTribune News

This is a story of lives being changes and others gaining hope as scientists make a historical genetic discovery through DNA sequencing for the first time. This is our family and here is the story as it happened.

Filed Under: In The Media Tagged With: DNA/Gene Sequencing for Jorde/Madsen Family

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